WE RACE FOR BEING FASTEST THAN CYSTIC FIBROSIS
Rachele is the testimonial of the Italian’s Cystic Fibrosis Research Foundation: Fondazione Ricerca Fibrosi Cistica Onlus
#CorrerePerUnRespiro was born from a Rachele’s idea to connect her passion in motorsport with the need to awareness and inform about the importance of research, over 300,000€ were foundraising in the paddocks, on the competition and during the events. This offers was used to support the excellence project “Task Force For Fibrosis” (TFCF) promoted in synergy with the C. Gaslini Institute and the Italian Institute of Technology (IIT) in Genoa (Italy).
CYSTIC FIBROSIS
Cystic fibrosis is a progressive, genetic disease that affects many organs like pancreas and in particularly causes persistent lung infections and limits the ability to breathe over time.
People with Cystic Fibrosis have inherited two copies of the defective CF gene: one copy from each parent. Both parents must have at least one copy of the defective gene and they are called carriers.
Each time two CF carriers have a child, the chances is about 25% (1 in 4) the child will have CF. More than 30,000 people are living with cystic fibrosis and more than half of the CF population is age 18 or older.
About one in every 35 person in the world is a symptomless carrier of the defective CFTR gene.
TO MAKE A DONATION
Bank transfer:
Fondazione Ricerca Fibrosi Cistica
IBAN: IT 27E0 2008 1171 8000 102134939
Causale “CorrerePerUnRespiro”
«For many years I can’t talk about my desease, too much difficult to explain and to be accepted. I was growing and with me the responsibilities of cystic fibrosis. Remain hidden didn’t help anyone and so, I have roll up my sleeves and think about something concrete for change my situation and that for other CF. From that moment I have fight agains my disease cooperating with Italian Cystic Fibrosis Research Foundation for awareness and fundraising for laboratory research project. This is the only way to give us hope and we will not rest until we find a cure.»
Rachele