WE RACE FOR BEING FASTEST THAN CYSTIC FIBROSIS
Rachele is the testimonial of the Italian’s Cystic Fibrosis Research Foundation: Fondazione Ricerca Fibrosi Cistica ETS
#CorrerePerUnRespiro (#RacingForABreath) is a charitable project founded in 2016 by Rachele, who, after several years of volunteering for the Fibrosis Cystic Research Foundation, decided to turn her passion for motorsports into a means of raising awareness about the genetic disease she herself is affected by and of collecting funds to support research. Through her experience as both a woman and a driver, Rachele brings her message of hope in scientific research as a tangible answer to the disease to the racetracks, service areas, and charity events.
In June 2023, #CorrerePerUnRespiro also became a charitable autobiographical book (published by Baldini+Castoldi), with proceeds donated to cystic fibrosis research.
Through the Charity initiative, from 2016 until the end of 2024, over 470,000 Euros have been raised in donations, funding significant research projects aimed at improving both the lifespan and quality of life for many individuals affected by the same condition.
CYSTIC FIBROSIS
Cystic fibrosis is a progressive, genetic disease that affects many organs like pancreas and in particularly causes persistent lung infections and limits the ability to breathe over time.
People with Cystic Fibrosis have inherited two copies of the defective CF gene: one copy from each parent. Both parents must have at least one copy of the defective gene and they are called carriers.
Each time two CF carriers have a child, the chances is about 25% (1 in 4) the child will have CF. More than 30,000 people are living with cystic fibrosis and more than half of the CF population is age 18 or older.
About one in every 35 person in the world is a symptomless carrier of the defective CFTR gene.
TO MAKE A DONATION
Bank transfer:
Fondazione Ricerca Fibrosi Cistica
IBAN: IT 27E0 2008 1171 8000 102134939
Transfer Reason “CorrerePerUnRespiro”
«For many years I can’t talk about my desease, too much difficult to explain and to be accepted. I was growing and with me the responsibilities of cystic fibrosis. Remain hidden didn’t help anyone and so, I have roll up my sleeves and think about something concrete for change my situation and that for other CF. From that moment I have fight agains my disease cooperating with Italian Cystic Fibrosis Research Foundation for awareness and fundraising for laboratory research project. This is the only way to give us hope and we will not rest until we find a cure.»
Rachele